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Videos uploaded by user “Dizzy Daze of Lynnea”
What's In My Bag? Dysautonomia Edition
 
07:12
My CamelPak has become indispensable in the past few months and I wanted to share with you one of best tools I've discovered on my dysautonomia journey!
Views: 3311 Dizzy Daze of Lynnea
My Neurocardiogenic Syncope (NCS) Diagnosis Story
 
13:58
The beginning of my story. It's generalized because these events unfolded over the course of a month, but I hope it gives you a picture of my experience. I will continue to play with how I create these videos, and will try to fix the auto-focus issue I was having XD I apologize for the face twitch, my glasses kept sliding down my nose!
Views: 7096 Dizzy Daze of Lynnea
Blood Patch: What to Expect Before, During, and After!
 
11:38
Follow me on my journey by visiting my blog, and get the latest updates on what I'm up to through my facebook page! I am always looking for input on what you would like to see next and I love answering your guys' questions! Facebook: fb.me/dizzydazeoflynnea Blog: www.dizzydazeoflynnea.com Music: Don’t Change a Thing by Youtube Audio
Views: 4605 Dizzy Daze of Lynnea
I Have Neurocardiogenic Syncope and Welcome to My Channel
 
01:37
Hello Guys and Welcome to my Channel, I am 21 years old and was diagnosed with NCS on March 25th, 2016. I've created this channel to both journal my life as I maneuver through my new diagnosis, and to help others with the same condition by giving you guys things I've learned and by encouraging you all to keep pushing forward. This diagnosis isn't easy, but I'm determined to make the best of it
Views: 2896 Dizzy Daze of Lynnea
Dysautonomia Life: Blood Pooling
 
01:16
Beware! You will see my feet in this video 😆 Follow me on my journey by visiting: Facebook: fb.me/dizzydazeoflynnea Blog: www.dizzydazeoflynnea.com
Chronic Illness and Isolation: Why I Say "I'm Fine"
 
16:01
It was important to me to be as honest as possible about my thoughts and experiences in the hopes you can glean something from them. Hope they can be of help!
Be Your Own Advocate! My New Diagnosis
 
15:49
PART 2 COMING SOON! My computer is broken so if it's a little glitchy, my apologies! Having doctors not believe you can be incredibly isolating, so I thought I would tell you about my recent experiance with it, and my recent medical update!
Dysautonomia (NCS/POTS): PASS OVER THE SALT
 
13:53
I created this video with the YouTube Video Editor (http://www.youtube.com/editor)
Blood Patch Update and New Social Media!
 
05:20
Blood Patch Update and NEW SOCIAL MEDIA! Facebook: fb.me/dizzydazeoflynnea Blog: www.dizzydazeoflynnea.com Music: Energy by www.bensound.com Illustration Image: https://www.pinterest.com/source/sarahbethrn.com/
Day of Lidocaine Infusion
 
19:59
For everyone interested in how my Lidocaine Infusion went! Music: www.bensound.com
Views: 1412 Dizzy Daze of Lynnea
Day of CT Myelogram
 
11:27
The process of my CT Myelogram, and the tears involved
Views: 4896 Dizzy Daze of Lynnea
What's New? Moving, Doctor Appointments, New Job?
 
05:50
Sorry for the shaky camera work! Contact Info: Email: [email protected] Twitter: https://twitter.com/LMarieViking
Near Syncopal Episode in the ER a.k.a WORK!
 
01:28
Jeeeeezzz Follow me on my journey by visiting: Facebook: fb.me/dizzydazeoflynnea Blog: www.dizzydazeoflynnea.com
Bad, Bad, BAD CSF Leak Pain
 
06:19
Sometimes you win, sometimes you lose. Follow me on my journey by visiting: Facebook: fb.me/dizzydazeoflynnea Blog: www.dizzydazeoflynnea.com
Dysautonomia Nightmare! Arizona: Long Car Ride and Hellish Hot Weather
 
06:10
I have now created a Twitter account so that you all can talk to me directly! Email: [email protected] Twitter: https://twitter.com/LMarieViking
Dysautonomia and Electrolytes: What Are They and Why Do We Need Them?
 
11:53
Sources: http://normalyte.com/ https://www.facebook.com/DysautonomiaInternational/posts/1014947785270767 http://www.medicalnewstoday.com/articles/153188.php Contact Info: Email: LMarieVi[email protected] Twitter: https://twitter.com/LMarieViking Facebook: LMarieVikingLady
NCS: My Symptoms and Triggers
 
13:54
Sorry for my slips of the tongue. I tend to replace or switch around words when I'm worn out😜
Views: 1491 Dizzy Daze of Lynnea
First POTS/NCS Episode of 2019: Stanford Finally Settles the Diagnosis Debate: NCS or POTS?
 
11:23
Sometimes you're body's gotta pull the emergency brake! Follow me on my journey by visiting: Facebook: fb.me/dizzydazeoflynnea Blog: www.dizzydazeoflynnea.com RESOURCES www.dysautonomiainternational.org/page.php?ID=30 https://www.youtube.com/watch?v=QyvWxobqKrc https://spinalcsfleak.org/q-a-with-dr-schievink/
2 Syncopal Episodes in a Month! Personal Leave?! What's Next?
 
02:45
Due to a complicated month or so, I've got a lot to catch you all up on, but I'll get there!
Starting School with Dysautonomia/ CSF Leaks, and The Power of Unrealistic Optimism!
 
20:29
Follow me on my journey by visiting: Facebook: fb.me/dizzydazeoflynnea Blog: www.dizzydazeoflynnea.com RESOURCES www.dysautonomiainternational.org/page.php?ID=30 https://www.youtube.com/watch?v=QyvWxobqKrc https://spinalcsfleak.org/q-a-with-dr-schievink/
NCS/ Dysautonomia and Being Sick !!
 
09:29
If anyone wants to message me privately, my email is [email protected]
Dysautonomia/NCS: Ask For Help!
 
02:36
Contact Info: Email: [email protected] Twitter: https://twitter.com/LMarieViking Facebook: LMarieVikingLady
Blood Patch
 
15:04
My whirlwind weekend of ER trips, Hospital Admissions, and OR Procedures! Music: www.bensound.com
Views: 1486 Dizzy Daze of Lynnea
Dysautonomia- Fibromyalgia-Mobility Aides! Vroom Vroom
 
13:32
I have now created a Twitter account so that you all can talk to me directly! Email: [email protected] Twitter: https://twitter.com/LMarieViking
Sometimes You Have to Stop in Order to Move Forward
 
09:38
Follow me on my journey by visiting: Facebook: fb.me/dizzydazeoflynnea Blog: www.dizzydazeoflynnea.com RESOURCES www.dysautonomiainternational.org/page.php?ID=30 https://www.youtube.com/watch?v=QyvWxobqKrc https://spinalcsfleak.org/q-a-with-dr-schievink/ https://vimeo.com/283562633 (POTS AND CSF LEAKS- DR CARROLL) Music: Lost Sky - Dreams pt. II (feat. Sara Skinner) [NCS Release] https://www.youtube.com/watch?v=L7kF4MXXCoA&list=PLRBp0Fe2GpglTnOLbhyrHAVaWsCIEX53Y&index=25 [Sara Skinner] • http://soundcloud.com/saraskinner • http://facebook.com/saraskinnermusic • http://twitter.com/hisaraskinner
Rough Seas Ahead?
 
10:42
Sorry for not posting for a while! Sometimes you just gotta focus on making it through the week 😝 Although this video isn't the cheeriest, there will be more positive videos to come, so don't worry! Follow me on my journey by visiting: Facebook: fb.me/dizzydazeoflynnea Blog: www.dizzydazeoflynnea.com RESOURCES www.dysautonomiainternational.org/page.php?ID=30
Dysautonomia International Conference!
 
04:32
East Coast Adventures!
Blood Patch #2 and the First 72 Hours
 
13:49
Follow me on my journey by visiting: Facebook: fb.me/dizzydazeoflynnea Blog: www.dizzydazeoflynnea.com Music: Memories by https://www.bensound.com/ Sound Effects: http://www.orangefreesounds.com
Occipital Nerve Block Update, and What Comes Next!
 
09:50
Hello again! This is a quick update on how the Occipital Nerve Blocks turned out, and our plan going forward. I will be making a "What's In My Dysautonomia Bag" ; video shortly! My new channel name is Dizzy Daze of Lynnea! I will update my contact info soon!
Views: 1056 Dizzy Daze of Lynnea
How to Get The Most Out of Your Doctor’s Appointments! 🚑🏥
 
05:45
Here are four tips to making the most out of your doctor’s appointments, and let me know what YOUR tips and tricks are down below!
Dysautonomia International Conference Day 1: Sign Up and Mixer
 
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Follow me on my journey by visiting: Facebook: fb.me/dizzydazeoflynnea Blog: www.dizzydazeoflynnea.com For more about Dysautonomia International, visit: http://www.dysautonomiainternational.org
Over A Gallon of IV Saline?! Overnight Stay in the Hospital
 
08:27
The best laid plans... Follow me on my journey by visiting: Facebook: fb.me/dizzydazeoflynnea Blog: www.dizzydazeoflynnea.com
Another Day, Another Fibrin Patch: A Possible Rebound Headache?
 
02:48
Follow me on my journey by visiting: Facebook: fb.me/dizzydazeoflynnea Blog: www.dizzydazeoflynnea.com RESOURCES www.dysautonomiainternational.org/page.php?ID=30 https://www.youtube.com/watch?v=QyvWxobqKrc https://spinalcsfleak.org/q-a-with-dr-schievink/
Dysautonomia International Conference, Nashville: What's in My Bag + Flying Tips ✈️
 
15:07
I'm going on an adventure! More to follow! Follow me on my journey by visiting: Facebook: fb.me/dizzydazeoflynnea Blog: www.dizzydazeoflynnea.com For more about Dysautonomia International, visit: http://www.dysautonomiainternational.org
Double D! Disneyland and Dysautonomia XD
 
11:02
I had a blast going on this trip, and my friends were a great help in pushing me around XP Music: bensound.com Created with Movie Studio Platinum
Fainting Episode: The Day After
 
07:28
If you notice me pausing a lot to think, or tripping over my words, it’s very common for me to have cognitive issues after an episode when it comes to Dysphagia and thinking ahead. Follow me on my journey by visiting: Facebook: fb.me/dizzydazeoflynnea Blog: www.dizzydazeoflynnea.com
Painsomnia! Tips on How To (Attempt) to Fall Asleep XP
 
07:50
This video is a accurate depiction of what most of my nights have become in the past two months, and I wanted to let ya'll in my on what I do to fight Painsomnia. Hope you enjoy it! Created with Movie Studio Platinum
Dysautonomia International Conference Day 2: Lectures and More Lectures
 
03:42
Follow me on my journey by visiting: Facebook: fb.me/dizzydazeoflynnea Blog: www.dizzydazeoflynnea.com For more about Dysautonomia International, visit: http://www.dysautonomiainternational.org/
Dysautonomia Conference Review and Possible Misdiagnosis?!
 
22:59
Follow me on my journey by visiting: Facebook: fb.me/dizzydazeoflynnea Blog: www.dizzydazeoflynnea.com Music: Prize Fighter by Youtube Audio Library RESOURCES www.dysautonomiainternational.org/page.php?ID=30
Compression Stockings Tell All! How to Put Them On, Style Choices, Etc
 
21:58
Sorry for the super long video, but it was sorta fun to make! For anyone who wants to contact me, my email is [email protected]
Views: 3412 Dizzy Daze of Lynnea
My IPhone Made a Video of my Dysautonomia International Trip, How Cool is That?!
 
01:11
This is super duper quick, but it gave me the feels so I thought I would share it with you. I ended up loving this trip, and it ultimately led to my CSF leak diagnosis without me knowing it. I never ended up making a video of it, so this will have to do. Hope you like it. Editing and music courtesy of my freaky smartphone that took it upon itself to make the movie without prompting through the Memories option in my photos 🤣🤣🤣🤣 Follow me on my journey by visiting: Facebook: fb.me/dizzydazeoflynnea Blog: www.dizzydazeoflynnea.com
Occipital Nerve Blocks and Milklshakes
 
07:01
What is a better cure for the Nerve Block Blues than milkshakes and salty fries! Created with Movie Studio Platinum
Feeling Human
 
16:10
Follow me on my journey by visiting: Facebook: fb.me/dizzydazeoflynnea Blog: www.dizzydazeoflynnea.com Music: Youtube Creator : "First Love" and "Dream of a Day" Useful Links: Dysautonomia: http://www.dysautonomiainternational.org/ https://www.ninds.nih.gov/Disorders/All-Disorders/Dysautonomia-Information-Page http://www.mayo.edu/research/departments-divisions/department-neurology/programs/autonomic-nerve-disorders https://www.ncbi.nlm.nih.gov/pmc/articles/PMC506859/ CSF Leak: https://www.mdedge.com/neurologyreviews/article/132780/headache-migraine/when-suspect-csf-leak-patients-headache (HIGHLY RECOMMENDED) https://www.youtube.com/watch?v=QyvWxobqKrc (HIGHLY RECOMMENDED) https://www.shlnews.org/?p=1126 https://www.csfleak.info/ http://spinalcsfleak.org/
Going Home with the New Me
 
12:31
The week was rough, coming with a lot of emotional ups and downs. Definitely glad I'm pass this part!
#PartTimeDisabled: Disability Placard Struggles
 
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Follow me on my journey by visiting: Facebook: fb.me/dizzydazeoflynnea Blog: www.dizzydazeoflynnea.com RESOURCES www.dysautonomiainternational.org/page.php?ID=30 https://www.youtube.com/watch?v=QyvWxobqKrc https://spinalcsfleak.org/q-a-with-dr-schievink/ Music: Ticker by Youtube Audio Library
Disneyland With Dysautonomia Take Two! Day 2
 
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Just Keep Swimming! -Dory Follow me on my journey by visiting: Facebook: fb.me/dizzydazeoflynnea Blog: www.dizzydazeoflynnea.com